I remember the Neurologists telling me "You have Alzheimer's. A slow progressing disease for which there is no cure, and it is terminal."
I looked him straight in the eye, took a moment to gather myself and said with the best voice I could muster up at the time, "Tell me someone who isn't terminal. We all are. I am lucky in a way. I have been told my time is limited. I will use that time wisely."
Most people think that at the time they are diagnosed that this is the end. When in fact, it should be the very opposite. It is the beginning of really knowing that you have put things into perspective.
You have to have a plan, starting right then. Not two months from then, or two years from then. The sooner, the better.
Many make the mistake of never having a plan and never changing anything as if this is all going to go away. It won't and it don't.
Some patients obviously progress faster than others. And much of it depends on if you have had dementia for some time, even before you diagnosis.
If you knew something was wrong but put off being checked for whatever reason. No one can tell how long you have had dementia. If you run into a doctor that says they can, it's time to look for another doctor.
I can honestly say I have spent my time since my diagnosis well. I could have crawled up on the couch and watched Dr Phil or something else just as useless.
But I decided to tell what it is like to have this disease. How no matter what you do, it changes you. And there is nothing you can do about it. You can learn to deal with it the best you can, or you can deny it.
Many people choose the latter. And that's fine. You can't make someone accept this. They have to want to on their own. Everyone has their own time table for things like this and some never come around.
You don't have to accept this. Not at all. But by accepting it doesn't mean you have given up, what it means is you understand what is happening and what is going to happen.
Even then, you will have days when you say "I just can't take it one more day", this can happen and most likely does to many patients and caregivers.
I wish I could say it will be easy. I wish I could tell you it will get better. The thing is, it won't. Take one day at at time. What you get here on Mp is more info than you will get in any twenty minute doctors office visit.
It is imperative they you continue to see your doctor. It's just that not a whole lot is going to be done. Here, we support, we understand, and we are family.
And simply put, you can't beat that...